What we remember (and how we teach our children about the world)

IMG_4498Bringing J to an awareness of the world–especially grown up things always makes me a little nervous. J’s brain is a steel trap for memories–especially memories that carry any pain or anxiety. J remembers things like back when he was in grade two, where the lunch ladies burnt the school pizza and set off the fire alarm while he was at gym, causing a (minor) evacuation. That was the 89th day of school and he won’t let that go. And every year since we hold our breath, cross our fingers, and go through all sorts of rituals to make it through the day when the 89th day of school rolls through. There’s a myriad little things like this J collects and stores in his brain, always remembering, always filing and pulling out those files occasionally to revisit them. To J, that’s what it means to remember.

November gets me thinking of the things we do, the rituals we do to remember things. Wednesday (November 11) was Veteran’s Day (U.S.) or Remembrance Day (Canada). American Thanksgiving comes up at the end of the month too. One of the things I remember as a kid—rituals ingrained in my head—came with Remembrance Day. As soon as Halloween was over, everyone started wearing poppies. Bright red flowers everywhere. In November we learned Remembrance Day songs in music class. I remember learning “One Tin Soldier” the 1969 song by The Original Caste. I remember it because it was a ballad—a story about a mountain kingdom and a valley. It was a war song. I mean, at seven and eight we were singing about people wanting to kill their neighbours, wanting treasure (which was really peace on earth), bloody mornings. You don’t forget things like that when you’re a kid.

 

And then there was the day before Remembrance Day at school. Where we watched old herky jerky black and white silent films of WWI and WWII footage. There was always an assembly—300 kids in a gymnasium where there was the reciting of In Flanders Fields by John McCrae followed by a junior high visitor who played a painful rendition of taps on their trumpet. And then 300 squirrely elementary kids sitting criss-cross applesauce on the floor were expected to sit through a moment of silence. Out of all the holidays and celebrations in Canada, I find it the most haunting, most patriotic, the most (almost) spiritual ritual Canadians have. And I wanted my kids to experience a little piece of that.

It’s a hard call sometimes as a parent, on what you want to expose your kids to. What are the world’s necessary evils you should teach them, warn them about, experience them to.? We’ve sheltered J and W a lot about what goes on in the “real world.” Even as an adult there’s only so much “real world” I can take before I want to shut off the TV or radio for a few months.

I wanted my kids to experience Remembrance Day—in that haunting, patriotic, spiritual way. But J has severe anxiety issues and that steel trap mind for things like this. But finally I came to this conclusion–history is safe. It’s behind you, it’s something you haven’t been through yourself, almost like reading a novel or learning the song “One Tin Soldier.” You can pick it apart and analyze it. Learn from it.

So we drove up to Winnipeg early Wednesday morning and made it (one time!) for the Remembrance Day service at the RBC Convention Centre. A cute military family sat behind us, two parents, service man and woman, telling their little elementary school boy what was going on while the black and white WWII footage was playing as we waited for the parade of flags to start the ceremony. “Who died?” The mom asked the boy. “Great grandmas and grandpas died,” the mom answers her own question.

My kids got to wear poppies and we sat through the whole hour and forty-five minute service. It reminded me of a funeral, the standing, the sitting, the standing, the sitting prompted by the emcee. The placing of wreaths (which took FOREVER—all the little kids [even mine] were a quiet squirrely in their seats).

And then, while I was sweating it out, hoping my kids would be quiet and respectful until the end, one of the speakers—a WWII vet (who recalled his arrival at Juno beach with all of the horrors of war) said, “if we don’t remember, who will?”

That’s why we do this. That’s why we make our children sit still and go through these rituals. Because it IS important. It’s important to J, with all of his anxiety and rituals and (at times) paranoia, it’s important for him to learn to be still and respectful and remember. He didn’t say a word through the service. I’m not even sure how much he picked up on. But that’s okay, because I don’t know if anyone of us can really understand what happened in those wars. But we do understand this: that we need to be grateful.

These past weeks we’ve talked about refugees with the kids. We showed them this video one of my cousins posted about refugees landing in Europe. We asked them questions about “what do you think it would feel like to leave everything at home and have to move to another country without any of your clothes or iPad or games or anything?” we say, “look at these kind people helping out. Do you think you would help out like that?”

Yesterday I had NPR on in the car. My kids never listen to NPR with me, but this time J heard “Paris” mentioned and asked. “What’s going on in Paris?” He’s obsessed with geography right now. He knows Paris is the capital of France. I didn’t know what to say. Does he really need to know this? I thought, but he is asking. He’s expecting an answer.

“Some bad people hurt and killed many people in Paris.”

“That’s not good,” he said.

“No, it’s not.” I said.

Right there, in the car, J learned another step closer to empathy.

We don’t tell him about the school shootings that happen so frequently. Murders, racism, descriminiation, and violence. We try to keep him away from the heart-heavy headlines. I think he’s steel trap brain would hold on and hoard all those things.

But we’re starting to talk about the human problems and struggles. The stories that help us remember we are a human family. Because it helps us help this autistic boy understand others and ultimately himself better. to learn those lessons in empathy.

We’re asking this question more and more:

“What do you think it would feel like?”

It’s that question that helps us all remember what it’s like to be human.

Room 404 and the Women’s World Cup

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We’ll start with room 404, because everyone loves a good hotel story. There’s something about being transient, staying overnight in a strange room where other people have slept just hours before you. Newsmagazines like 20/20 like to go in and investigate with black lights all of the horrors that lie in the bed sheets, walls, and bathrooms. For some reason we like to be thrilled and terrified by hotel rooms.

Growing up, my family had a lot of road trips, and the highlight of every road trip for me and my sister was staying in motels. We loved the creepiness of them. We loved to freak each other out with the “did you hear that?” “did you see that?” at the random gurgles of the running toilets or flash of headlights pulling into the parking lot in front of the room next to us. I remember one night sitting at the edge of a lumpy floral comforter, staying up to watch an episode of Sherlock Holmes on a patchy cable station on our way to our grandparents in Ontario. It was the Adventure of the Speckled Band–the one about the mysterious room in the mansion where they find a person dead and discover that the perpetrator is a adder snake that crawls through the ventilation system to access its victim. Best episode ever for a night in a motel. For the rest of the night my sister and I lay terrified, twitching under the wool sheets waiting for a snake to crawl through the vents. Best motel stay ever.

Unfortunately terrifying never ends up being thrilling for J. It always just stays terrifying. We headed up again to Winnipeg on Friday to watch the Women’s World Cup USA v Sweden match because Steve and W are crazy about soccer. At first it seemed that we could pull off another whirlwind trip up to Winnipeg and to make it easier on us, we decided that this time we’d stay in a hotel and not have to roll into Fargo at 3 am. Everything seemed to be going our way, J cleared the 25 min wait at the border, there was no fighting between J and W in the backseat, Steve and I were relatively calm, despite the fact we realized that we were running late and we still needed to stop at our hotel in downtown Winnipeg before we could eat dinner and loop back to the stadium. It was about 5 min into Winnipeg when J started to get panicky.

J: “We’re staying in a hotel, right?”
Me: “Yes.”
J: “When are we going to the hotel?”
Me: “Right now.”
J: “I want to be there NOW.”
Me: “We will, it’s just a few more miles.”

At this point, J starts hyperventilating in the back seat. I feel his feet kicking the back of my seat and his voice gets higher and higher in pitch as his sister, W tries to calm him down.

J: “We’re here, we’re at the hotel!”
Steve: “We’re almost there. It’s on Smith St. Can you help me find Smith St?”

At every intersection J yells, “Stop the car, we’re here, we’re at Smith St.”

All this is happening while Steve and I are trying to navigate downtown Winnipeg–the one ways, the funky intersections, the driving lanes that all of a sudden turn into side street parking and you have to switch lanes last second, eyes scanning frantically for Smith street. The entire car is a shaken up pop bottle just waiting to explode.

J is crying in the back seat: “My head hurts, my stomach hurts.”

And then I realize J is having a panic attack and I suddenly realize why he needs to get to the hotel now.

J has number phobias–right now it’s the number 142. He collects bad numbers in his brain and likes to let them stew in anxiety until they’re absolutely perfectly tainted and some sort of catastrophic event is going to occur if that number pops up. I’m not sure if it’s the autism, the anxiety, obsessive compulsive disorder. At this point it doesn’t matter. This isn’t the imaginary snake in the room that’s thrilling and terrifying. This is the number 142 we’re talking about and to J is just terrifying.

I know exactly what the problem is, and I can’t do anything about it.

“What number is it? What number are we staying in?” J yells between sobs.

“I don’t know,” I say, “It doesn’t matter. It’s just a number.”

J: “What number is it!” he shrieks.

There are ways to talk through anxiety, things I should be doing but I don’t remember right now and I don’t care. I’ve been in the car for 3 hours. I’m a little stressed out right now.

“I don’t know,” I yell back, “It’s just a stupid number. You have to learn to just get over it. It’s just a number. Get over it!”

I know. Not my finest parenting moment. And with everything I’ve read about parenting anxiety, it’s probably one of the worst things to say to someone with anxiety: just get over it. I’m not a person who has chronic anxiety. Yes, I have my stress out moments like right now in the car, but real anxiety doesn’t make sense to me. I’ve had this discussion with J’s therapist before. He’s explained to me that anxiety doesn’t make sense. That’s it’s a faulty switch in the brain that makes the brain go into fight or flight mode over (seemingly) non threatening stimuli. To J, it makes total sense to him.

By the time we pull into the parking lot, J is jumping out the car. Steve and I barely have time to process what kind of place we’ve checked into, since there is a security officer patrolling the lot and it IS downtown and it was the last available room in Winnipeg and there are a lot of random people just loitering. We quickly catch up to J and head inside. J beats us to the lobby desk and on his tiptoes (it’s a really tall desk) leans over to the man in a ponytail and practically yells at the man, “What number is it!”

“Hey,” Steve says, “We just came in from Fargo, and we just want to check in.”

I say a silent prayer to myself that we are not staying in #142.

“Room 404,” the man says, sliding the keys to Steve. “You can take the elevator or stairs.”

“304?” J says–this is his trick. He’s still revved up on anxiety and changing things makes him feel like he’s in control when he feels so out of control.

“You know it’s 404,” Steve says to J. “And this number’s just fine.”

After we unload our car and wave goodbye to the security officer, we head to the stadium. J is still revved, but he’s starting to calm down. In fact, by the time we make it to the stadium, he’s exhausted.

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Somehow we made it to the stadium on time. Somehow we survived the game–buying $12 worth of water bottles (at $3 bucks a piece) because that’s all the Canadian cash I had on me. J wanted mini donuts but he handled just having water. The poor kids was exhausted. For most of the game, he lay in Steve’s lap as we all cooked in the sun. W had a blast. We sat by some good friends of ours from Fargo and W loved sitting by her BFF. She got into all the crowd chants. She loved picking out the plays and the “bad calls” along with the people who sat behind us (whose American flags kept flapping at the back of my head. I kept thinking I was having beer spilled on me). I’m glad she had a good time.

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It sounds a little dramatic. Lots of times things in the Beck family end up being a little dramatic. A lot of that is because of the autism. But I would go back and do this trip all over again. Just because it can be stressful doesn’t mean that we shut down life and hide out at home. W needs these experiences. J needs these experiences. Steve and I need to get out and have a life too.

It’s all part of trying to navigate real life. Meltdowns included.

Bringing Autism to a Rock Concert

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I should start off by saying that there probably isn’t one right way of doing this. In fact, initially, we weren’t sure if there was any real way of doing this. If you do the math, taking J to see Imagine Dragons looked like this:

autism + travel 3 hours to Winnipeg + alternative rock concert late at night = pure insanity

So we decided to go ahead and buy 4 tickets despite of all that. YOLO, right?

We were banking on a few things. This was Imagine Dragons. J is absolutely obsessed with Imagine Dragons, so there was a chance it might work. And J is fresh off his first year of middle school so we have maturity (HA! sort of) on our side. J’s always up for a car trip, so the three hours to Winnipeg wouldn’t be a problem.

But there are plenty of potential “hiccups” when it comes to autism, and the fact that we would be technically out of the country if any meltdowns occurred and hours from home was a little unnerving to both me and Steve. You just can’t turn back and go home after 5 min of a failed attempted when it’s three hours back to Fargo. As Steve’s dad would say, we were “working without a net ladies and gentleman.”

These were the potential anxiety hot spots we anticipated:

1. Crossing the border

2. Waiting. Waiting through the first act. Waiting for the right song to come on.

3. The Sensory Overload Extravaganza of strobe lights, lasers, smoke machines, 120 decibels of distorted sound, and much, much, more.

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Crossing the Border: We checked the wait times at the Pembina/Emerson border online the hour before we left. When we left at 2 pm the wait time was 40 min. This was bad news. 40 min to wait in a parked car was 40 min to fuel anxiety for the rest of the night. I couldn’t think of anything but, “If any meltdowns happened while we are waiting or talking to the border patrol I will take away all privileges and turn the car back to Fargo.” You know, your standard parenting threat. J was motivated. He didn’t want to lose privileges or the concert and told me he would have no problems. Luckily, by the time we got to the Pembina crossing there was no wait. First hot spot averted.

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Waiting: Steve and I have been to enough concerts to know that even though your ticket might not say it, there is ALWAYS AN OPENING ACT. The concert tickets stated that the concert started at 7, so we timed our departure from Fargo to get to the MTS Centre around 7:30 ish to catch the tail end of the opening act and make sure we were there at the start of the Imagine Dragons opening number. Once we crossed the border, we heard via a radio station that the opening act would end at 8:15. Steve and I quickly changed our strategy. We would eat dinner, hang out, and take a walk around the Forks to kill time and then show up at the MTS Centre around 8:15. J is a clock Nazi, so he soon discovered our change in schedule, but conceded that it was “just a glitch” (thank you SLP Amy and Social Thinking jargon) and he was fine to eat at the Forks. However, when we arrived at the MTS Centre at 8:00, the ticket scanners told us there was ANOTHER opening act and that Imagine Dragons wouldn’t be on until 9:30. Another “glitch.” We tried walking around the MTS Centre downtown, but if you know Winnipeg nothing is open after 8:00 pm. The only thing open was Dollarama. We bought J a $3 hat. We killed some more time. Finally at 9:30 we were in our seats ready for the show to start.

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Sensory Overload: I tried to prepare J for this a few short days before the concert. Most kids with autism benefit with knowing exactly what is going to happen before it happens. Unfortunately, with J this backfires. You have to find that sweet spot where you give enough info but not too much (and not too far in advance–his anxiety will have a heyday discovering everything that will go wrong if he knows too much). I YouTubed pirated cellphone recordings of Imagine Dragons concerts. Thank you YouTube user XE53 for your recording of the 2014 Seattle, Washington concert. J was able to see all of the pyrotechnics and poor audio in all its glory in anticipation for the real concert. I explained to him that the concert would be very loud, have lots of flashing lights, and maybe fireworks. I told him it would be fun and asked him if all of the lights and sound would be okay. He told me it would be “just fine” so we decided to bring his sound reduction headphones, “just in case.”

At around 9, we sat through the last few songs of Metric, the very last opening act. It was a warm-up–a test for us. J closed his eyes tight during the first few sets of strobe lights and I thought, “this is it–we’re headed home,” but his eyes flickered open. By the time Imagine Dragons opened with “Shots” J’s nervous system, J’s anxiety seemed to settle down. For the first time since 2pm, I felt I could settle down and just be there in the moment too.

I’m so glad we risked it. The tickets, the time, the travel. You never know what will happen with autism. You can plan everything right, and everything can still go wrong. The look on J’s face was just priceless when his favorite songs came on. It’s an enormously powerful experience attending a live concert. You feel the music in an entirely different way. It was exciting for us to see J experience that.  We made it to the second to last song (nearing 11:00 pm), when J said he was done. A total success for the Beck history books.

Today J woke up at noon, singing the lyrics to “Shots” to himself and announced to everyone with great enthusiasm, “I’m awake and I’m okay.”

Glad to hear J. I’m glad we all made it through last night.